ABOUT THE ASSOCIATION
The GBS Association of New South Wales is a non-profit Volunteer Organisation
Registered Charity No. CWD295 Incorporation No. Y13693-18
Annual membership of the GBS Association is $16.50 (GST inclusive) for Australian residents and $27.50 (GST inclusive) for Overseas residents. Because of the low membership fee, we look forward to donations of any size. Donations $2.00 and over are tax deductible. Please make all cheques for Australian Dollars out to:
The Guillain-Barré Syndrome Association
PO Box 572
EPPING, NSW 1710 AUSTRALIA.
Members receive a newsletter 4-6 times per year.
THE AIMS OF THE GBS ASSOCIATION ARE TO
* Increase the awareness of the general public of GBS and CIDP.
* Inform medical and rehabilitation staff of the existence of our Association.
* Visit and encourage existing and newly diagnosed people with GBS or CIDP.
* Maintain telephone support contact numbers for the use of the above.
* Distribute literature on GBS and CIDP to patients, relatives, friends and members of the medical profession.
* Establish a stock of equipment for loan according to need; and most importantly.
* Raise the necessary funds to achieve our aims.
In our efforts to inform the public about GBS and CIDP, and raise the profile of the Association, information and newsletters are sent at every opportunity finances allow. Our literature is sent out to General Practitioners, Neurologists, hospital social workers and other health professionals. In addition, attempts have been made to place articles in medical journals. Recently we have produced brightly coloured invitations and posters which we hope to display at hospitals and medical centres.
EXAMPLES OF SUPPORT AVAILABLE FROM THE GBS ASSOCIATION
Initial contact is usually made by a telephone call from a patient, relative, friend or hospital personnel to our Association's Support Secretary.
Please ring (02) 9617 0883
Hospital visits can be arranged if the patient is in a condition to receive a visit and if they are interested in seeing somebody who has recovered from GBS. Hospital visits continue as long as required and often several Association members may visit over a period of time. We try to match the recovered patient as closely as possible to what we know of the patient currently in hospital.
On-going contact is always available to patients, their relatives and friends. Telephone contact support is always available to members at any time they feel they need to talk to someone.
Equipment loan is available through the Association for any member having difficulties and in need of assistance.
All GBS support is provided on a voluntary basis. The closeness of the GBS Association is reflected in the fellowship we have throughout the Association and Chapters.
Information on GBS and CIDP is supplied free of charge to any interested parties. Please contact the Association on (02) 9869-1839 or write to:
The GBS Association
PO Box 572
Epping NSW 1710
These are sent out to members 4-6 times per year (level of funds determines frequency). To receive yours, fill out the Membership Form and return to the GBS Association.
GBS ASSOCIATION WISH LIST
* More donations and benefactors.
* More hospital professionals to become members (which would improve their knowledge).
* Encouraging more people to donate blood and plasma to increase the production of immunoglobulin and getting the need of CIDP patients more recognised and their status raised higher on the priority list.
* Less GBS and CIDP patients.
* Improved general awareness of GBS and the Association .
* Last but naturally the ultimate - A CURE FOR GBS AND CIDP.